Manual post 1 - test event
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Sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum a donec.
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Sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum a donec.
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450
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32 %
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£ 1000
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450
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32 %
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£ 1000
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Body copy sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum a donec. Porttitor magnis faucibus quis sagittis this is a link volutpat ipsum dictumst et dignissim sed turpis. this is a visited link ac neque amet, pharetra, semper. Ipsum pharetra gravida est sit sodales duis lectus.
Sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum a donec.
Paragraph body sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum.
Sed enim odio fames pretium cum viverra nibh egestas. Sagittis, tempor a mattis lectus. Mattis blandit neque dui pharetra senectus consequat et tempus viverra. Sed laoreet sed augue facilisis venenatis ut. Et felis convallis condimentum bibendum eget natoque sem. Felis, pretium morbi rutrum a donec.
Featured promos (inline) - MANUAL - Manual
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Manual post 1 - Homepage
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Featured promos (inline) - Manual - FROM CMS
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News and stories
All of the latest news and updates from Genetic Alliance UK can be found below. This includes the release of our latest reports and findings, as well as pieces that our member organisations have requested that we share.
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Government announcement about NHS England
Today, Prime Minister Keir Starmer, announced that NHS England will be reintegrated into the Department of Health and Social Care (DHSC). This decision is aimed at improving service delivery. Read the full press release from the DHSC.
England Action Plan launched
Minister Ashley Dalton, Parliamentary Under Secretary of State for Health and Social Care, spoke to attendees at the Rare Disease Day Westminster reception yesterday, providing a preview of the 2025 England Rare Diseases Action Plan, launched today. In her speech the minister praised Genetic Alliance UK and our members for the role we’ve taken to inform this plan. So what’s new?
Instagram Saved My Life
This year’s theme for Rare Disease Day 2025 is ‘More than you can imagine’ and Tilly's story really has turned out more than she could ever have imagined; a story which proves rare does not mean impossible.
Update from Genetic Alliance UK
An update on the CEO of Genetic Alliance UK.
Jude’s story
It took 10 years for Jude to be diagnosed with KBG syndrome. It was a relief for the family to get the diagnosis after so many years of seeking answers. However, they found that not many healthcare professionals had ever heard of KBG syndrome and therefore couldn't offer much support through their journey. When Jude hit secondary education he attended a special school where he flourished, and felt supported. He now has big goals and dreams, despite his condition.
Our Rare Story – FoxP2
Receiving a diagnosis can help bring clarity. In our recent blog we hear about a daughter who has been diagnosed with FOXP2 related speech and language disorder. We learn about the challenges that comes with this rare condition, and about the advancements in research and incredible organisations that are around to support people with this conditions.
