Rare Disease Day 2024

Did you know that there are 3.5 million people in the UK living with a rare condition? And that 1 in 17 people will be affected by a rare condition at some point in their lives?

For Rare Disease Day 2024 we want to highlight that although rare conditions are individually rare, they are collectively common. We will be sharing the statistics that surround living with a rare condition and telling the stories of the people behind them. People with genetic and rare conditions are at the heart of everything we do and we want to ensure that their experiences are shared to illustrate the stories behind the statistics.

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