Donate Become a member
A collection of people around at the Genetic Alliance UK Rare Disease Day event in Westminster parliament. Everyone stands listening to a speaker, stood on a podium, to the left of the image

Become a member

Genetic Alliance UK was established in 1989 and has over 200 member organisations – will you be our next? 

Genetic Alliance UK is the largest alliance of charities and support groups working together to improve the lives of 3.5 million people in the UK living with genetic and rare conditions. Our members and the people they support are at the heart of everything we do. 

We advocate for fast and accurate diagnosis, good quality care and access to the best treatments. We actively support progress in research and engage with decision makers and the public about the challenges faced by our community. 

 

Who is eligible to become a member?

Membership of Genetic Alliance UK is open to organisations, groups and charities associated with genetic and/or rare conditions. Membership is free for organisations with an annual income of less than £10,000. 

To be eligible for membership of Genetic Alliance UK, your organisation must: 

  • Support people in the UK living with rare and/or genetic conditions.
  • Have established governance (the minimum requirement is a governing document).
  • Have at least two unrelated individuals on a Board or decision-making group (in the context of membership eligibility, family members, spouses and partners are considered to be related).
  • Have governance and financial information available for the completion of our due diligence checks. Information must be either publicly available (for example, via the Charity Commission website or Office of the Regulator of Community Interest Companies) or independently verified and shared with us by the applying organisation.
  • Have a website which gives information on what your organisation does and includes contact details for individuals within the organisation (the minimum requirement is a public social media group page). 

 

As set out in our Articles of Association, membership of Genetic Alliance UK is at the discretion of our Board of Trustees who are the ultimate arbiters of whether or not an organisation’s membership is in the best interests of Genetic Alliance UK. 

Our membership eligibility criteria are regularly reviewed by our Board of Trustees. 

Approved – December 2023

For review – December 2024

Apply now

If your organisation meets this criteria then APPLY NOW or contact us via [email protected] for further information.

Application form

Two woman at a desk looking to be having a constructive conversation. One listening intently, looking down, and the other showing motion with their hand, in mid conversation. The desk is scattered with papers and Genetic Alliance UK reports.

How much does membership cost?

Membership is free for organisations with an annual income of less than £10,000 per year. Above this amount, there is an annual membership fee based on organisational income. 

As set out in our Articles of Association, membership of Genetic Alliance UK is at the discretion of our Board of Trustees who are the ultimate arbiters of whether or not an organisation’s membership is in the best interests of Genetic Alliance UK.

Our membership eligibility criteria are regularly reviewed by our Board of Trustees. 

Contact us via [email protected] for further information on membership of Genetic Alliance UK