General Election 2024

Pledge for People with Genetic, Rare and Undiagnosed Conditions

Genetic Alliance UK’s Pledge for People with Genetic, Rare and Undiagnosed Conditions campaign has now ended. Genetic Alliance UK will now undertake a campaign to raise awareness of genetic, rare and undiagnosed conditions with new parliamentarians and the new government. 

Read our open letter to the new government and support our MP contact campaign. 

Visit our campaigns and research page for details of our current campaigns.  

The Pledge for People with Genetic, Rare and Undiagnosed Conditions Campaign

The Pledge for People with Genetic, Rare and Undiagnosed Conditions campaign ran in the weeks preceding the 2024 UK General Election. We encouraged prospective parliamentary candidates to pledge:

If I am elected, I will support people living with genetic, rare and undiagnosed conditions by:

  • Helping people get a timely and accurate diagnosis 
  • Raising awareness of these conditions within the NHS
  • Ensuring people have access to coordinated care 
  • Improving access to specialist care and treatment

 

The pledge was based on the calls outlined in our manifesto for rare diseases, developed in partnership with the Specialised Healthcare Alliance. 

We would like to thank all the individuals and organisations who promoted the campaign and encouraged their prospective parliamentary candidates to pledge their support. 

These candidates signed our pledge to support people living with genetic, rare and undiagnosed conditions – shown in alphabetical order of constituency:

  • Sally Pattle, Bathgate and Linlithgow, Scottish Liberal Democrats 
  • Henry Vann, Bedford, Liberal Democrats
  • Ray Georgeson, Berwickshire Roxburgh and Selkirk, Scottish Liberal Democrats
  • Ian Middleton, Bicester and Woodstock, Green Party
  • Hannah Jarvis, Blaenau Gwent and Rhymney, Conservatives 
  • Liz Twist, Blaydon and Consett, Labour
  • David Hancock, Bolsover, Liberal Democrats
  • Phyllis Graham, Carryduff Belfast, SDLP
  • Lorna Russell, Hampstead and Highgate, Green Party
  • Marion Fellows, Motherwell, Wishaw and Carluke, SNP
  • Craig Dobson, Normanton and Helmsworth, Liberal Democrat
  • David Mathias, Pontypridd, Liberal Democrats
  • Neil Duncan-Jordan, Poole, Labour
  • Tom Hill, Rawmarsh and Conisbrough, Green Party
  • Attic Rahman, Tottenham, Conservatives 
  • Graham Gowland, Warrington South, Liberal Democrats  
  • James Abbott, Witham, Green

If your candidate pledged support during the election period and they are not listed above, please let us know at [email protected]