We strive to make our work accessible so that others can use our information, knowledge and resources.
These are some of our resources that can support your own work, awareness raising and more. Additional information available via ‘Our reports and impact’ and ‘Facts and figures.’
If you use these resources or reference our work then please email and tell us. We’d love to know and it will help to shape our future work.
Featured
We have worked with our members to demonstrate the value of care coordination and the impact of its absence. The report shows the value of care coordination can be seen across five themes.
The Rare Resources guides have been produced by Genetic Alliance UK for families who have recently received a diagnosis of a genetic or rare condition, are on the journey to a diagnosis or who have been told their child’s condition is so rare they might not get a diagnosis.
The Rare Resources guides have been produced by Genetic Alliance UK for families who have recently received a diagnosis of a genetic or rare condition, are on the journey to a diagnosis or who have been told their child’s condition is so rare they might not get a diagnosis.
